Yahoo! Groups: EBworld
Mailing list support group for parents, patients, and those interested in learning about disease.
DebRA International
Dystrophic Epidermolysis Bullosa Research Association. A voluntary, non-profit organization dedicated to creating awareness and providing support for families affected by Epidermolysis Bullosa (EB). Includes treatment and care information, latest research, organization history, and forums.
DebRA UK
Features organization background, information about the disorder, fundraising and research details, and news.
DebRA of America
Offers information, news, newsletters, support, and resources.
DebRA Canada
Includes articles, news, and information about this genetic disorder.
DebRA Australia, Queensland Branch
Features disorder information, organization background, publications, photo gallery, and information about the NSW branch.
EB Info World
Information, mailing list, pictures, and help for new parents.
EB Medical Research Foundation
A volunteer, nonprofit foundation dedicated to the support of medical research about this disorder. Includes information about research, videos, and organization information.
Cristina's Castle in the Clouds
Information and support for those interested in a skin disorder called epidermolysis bullosa. Message board and also a list of camps for children with this disorder.
International EB Forum
Includes downloadable articles and booklets as well as links of interest. Also offers password-protected forums for professionals.
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